Hearing Loss — The Forgotten Problem

This week I share a school project written by my son. The assignment was to write about a cause that is important to you and then deliver a speech about it to the class. He is in 7th grade. While not every detail is perfect in his talk, his experience growing up with a mom who has hearing loss shines through in bright detail. I am so proud of his efforts to raise awareness about hearing loss and love his suggestions for how his peers can help. 

I share his speech below, lightly edited.

Mom-and-son

Hello. I am here to talk about the hearing loss issues in this country. Many of you may not think that this is a big deal, but according to Hearing Loss Association of America, 48 million people have some amount of hearing loss in the United States. This topic is very important to me because my mom has hearing loss and it is a struggle for our whole family to always speak loud enough and look at her when we are speaking. It is also a huge struggle for her to have to bear with sometimes not being able to hear us when we are speaking.

The devices that help people with hearing loss are called hearing aids. Hearing aids take the sound from the outside world and amplify it inside people’s ears. You may think that this solves the problem, but there is much more to it. They don’t always work the way you expect. Having hearing aids can also restrict you in many ways. One way is you can’t swim with them so when you snorkel it is hard to hear. 

Another problem with hearing aids is that they are super expensive. They sell some cheaper hearing aid type devices at stores, but they are usually not as good as the ones from a hearing doctor. This means that poorer people don’t have the access to the tools they need to hear well.

You would think that most insurance would cover hearing aids because they cover glasses and doctors appointments, but barely any do. I saw a flyer on the street once for a company that covered hearing aids and I immediately sent a picture to my mom about this saying OMG LOOK WHAT I FOUND because this is so rare! Insurance says that glasses are more important than hearing aids but they both help one of our senses. 

It is hard for people with hearing loss to function as well in the world as others because most places don’t try to help the hearing impaired. For example, at some movie theaters they have a device that shows captions for the movie. These are nice, but sometimes they don’t work. Also, at many places when they show videos they don’t add captions and on places like YouTube, the captions aren’t correct a lot of the time. 

How do people get hearing loss and what happens inside your ear? 

If you listen to a loud enough noise for a certain amount of time the hair cells in your ears that send the electric signals to your brain die, and from there, there is no coming back…yet. Scientists are trying to figure out a way for humans to be able to regrow inner ear cells. The only animal that can do this is surprisingly a chicken. I mean, out of all animals, a chicken. The scientists are trying to find out how the chickens do it so maybe they can replicate that for the human body. I raise money with my mom through hearing walks that go to supporting this cause. Editor’s note: Most birds and fish can regenerate their hair cells. Mammals cannot.   

What we can we do for the moment?  

— You can educate others about what you heard and spread the news that noise is damaging.

— You can wear noise-cancelling headsets when you go on an airplane. Even though it does not seem loud, it is still very loud.  

— Also parties, yes, they are fun but they are very damaging to your hearing because of all of the super loud music that they play there. What I do when I go to them is I wear earplugs that block out most of the noise so I don’t damage my ears.

— Additionally we can try to get the movie theaters to have and develop a captioning system that works better. For example now at some Broadway shows, they have caption boards on the side of the stage for the people with hearing loss. My mom loves these because it gives her the chance to understand what everybody else understands and hears about the show.

I hope now you understand why this issue should not be forgotten. Thank you.

Readers, do you spread awareness about hearing loss among your peers?

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29 thoughts on “Hearing Loss — The Forgotten Problem

  1. Awesome. Great team member- that son of yours- creating awareness among his peers – the kids will have awareness that is rarely taught in a straightforward non confrontational way. They will understand where’s too many folks do not
    Well done Mom

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thanks! It was a great assignment and I am so proud of where he took it.

  2. A fine piece, well-written and easily comprehended. You’re raising a great advocate there! Nice pic of the two of you. 🙂

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thanks! I am a proud mom!

  3. Wow Shari, you’re raising a very articulate and empathetic young man. He knows so much and touches on so many of the struggles that others don’t always grasp. Keep up the good work and thank you both for raising awareness so well.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thanks for your comment!

  4. myhearinglossstory – Hi, My name is Carly and I'm currently living in Spain. I am originally from a small seaside town in Yorkshire called Bridlington and have also lived in China and Thailand. For 14 years, I worked as a teacher, specialising in Early Years Education. I am currently working as a transformational coach for people with hearing loss, and a hearing health writer. In August 2016, I experienced sudden sensorineural hearing loss in my left ear. I started this blog as a way to inform my friends and family about my progress, for anyone else who is going through a similar experience as me, or for anybody who is interested in learning about this type of hearing loss, and the way it can affect everyday life. I am also the founder of the Sudden Hearing Loss Support website, which provides information and support to anyone affected by sudden hearing loss. I love walking in the countryside, getting lost in Madrid, going out for breakfast, taking photos, listening to music, storytelling podcasts, baking, running, drinking wine, and eating spicy food.
    myhearinglossstory says:

    Your son has such a in-depth understanding of hearing loss! It’s great that he can educate his peers about this in a knowledgeable and caring way. A wonderful piece of writing! 🙂

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      He lives it every day with me so he definitely gets it. Thanks for your comment.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thanks so much for your kind words.

  5. Your son is a wonderful, intelligent young man and you must be so proud him.

    And to your son I say –

    Young man, you show wisdom beyond your young years. Anyone would be proud to call your their son.

    I wish you all the very best for your future, because you have a great future ahead of you.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      I am very proud! Thanks so much for your kind words.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thank you! Best wishes to you and your family as well!

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thank you. I am very proud of him.

  6. How wonderful that your handsome seventh grader son glows with passion and intelligence regarding hearing loss. Most important, he shares the realistic challenges and possible solutions for hearing loss without any embarrassment about his mom. THAT is what children and adults need to see. Shari, you, as a role model for the hearing impaired, created a parallel in your son as an advocate for those with normal hearing … may your son continue sending his message that the hearing impaired are “Normal” functioning and intelligent people too.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thanks so much for your kind words! I am certainly a proud mom!

  7. Awesome He will be able to convey to a younger generation better understanding of the hearing impaired . He himself with normal hearing seeing the impact it has because of you his mom. More folks are becoming so at a younger age due to noise, earphones and music, etc. May be a few to stop some things to make sure of no loss. Huey Lewis,Peter Townstead,Nannette Fabray , etc are/ were hearing impaired
    Also since your son is of a certain age- there are two manna series with hearing impaired characters,1 is A silent characters Voice,cannot remember the other one. I think I may have told you in a previous blog
    New book out- is okay. Has some bits in it- Charlie and Frog by Karen Kane. A okay mystery but I like the mixture of characters in it.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thank you for reminding me about the book. Hearing loss impacts the whole family!

  8. This is a great writing by your son!! I enjoyed reading it, and hope it can & will reach many more people. Awareness is such a huge issue, and should be started anywhere and everywhere!!

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      I agree! Building awareness is so important. Thank you for your comment.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Will do! Thanks for your comment.

  9. I love it. The speech was educational and inspirational. There is a lot of misunderstandings about hearing loss and hearing aids. I am sure you are proud of him.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Very proud. Thanks for your comment.

  10. It’s interesting that the only animals that can regrow their inner ear cells are chickens. My brother has been losing his hearing, so I’ve been wanting to learn more about it. I’ll be sure to share this article with other family members, so we can better help my brother.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      All birds and fish can regrow these cells. It is an important part of the research into how we can do the same for humans. Thanks for reading!

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