I Love My Hearing Loss Friends

When I walked into the Hearing Loss Association of America (HLAA) convention in Phoenix, I immediately sighed with relief. I was home. At most conferences I attend, I worry about communication access.

Is captioning provided in the workshops?

Are assistive listening devices available?

Will I be able to participate fully?

But at HLAA I don’t have these concerns. Captions are available in all sessions, as are hearing loops so that anyone with a T-coil in their hearing devices can access the sound system directly. This year, three conference rooms were also outfitted with Auracast transmitters, allowing attendees to give this emerging technology a test run. Amazing!

But the conference is more than just good communication access, it is a place for friendship, support, and fun. It’s a place where hearing devices are cool!

Group of female friends posing for a photo

Do You Have Hearing Loss Peers?

Each year at the convention, first-time attendees share their awe and excitement as they discover other people who truly understand their hearing loss lives. Tears are shed, hugs are plentiful, and new friendships blossom. All the while, stigmas are shredded, confidence grows and lives are changed for the better.

The experience reminds me of one of my favorite MindShifts from Hear & Beyond: Live Skillfully with Hearing Loss.

AttitudeMindShift
Nobody understands what I’m going through.Many people experience the same challenges as I do. I can learn from them. l’m not alone.

I was a newcomer once too.

At the start of my hearing loss journey, I didn’t know anyone with hearing loss except my father. He was highly stigmatized by it and would not discuss it with me. I had nobody to commiserate with, to learn from, or to help brainstorm communication tricks and strategies. Meeting other people with hearing loss changed my life for the better.

Convention Highlights: The Emotions of Hearing Loss

This year’s convention was back to pre-Covid attendance levels, meaning there were plenty of familiar faces, but also many new ones. I love expanding my network of hearing loss peers—many are incredible advocates in their local communities and beyond. I learn so much from each and every one.

Workshop highlights included a deep dive into Auracast, a panel discussion with tips for parents of children with hearing loss, and an interesting look at the challenges hearing loss researchers face—including a dearth of funding.

My favorite session was the Research Symposium which explored the emotional side of hearing loss. We heard from leading researchers in the field and Gael Hannan brought down the house with her poignant portrayals of the emotions many of us with hearing loss experience regularly—frustration, sadness, embarrassment, but also gratitude.

Thank You!

I am grateful for all of you. Thank you to the hearing loss community for your friendship and support, and most of all, your understanding. I can’t wait to do it all again next year in Indianapolis!

Readers, do you have hearing loss friends?

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Book: Hear & Beyond: Live Skillfully with Hearing Loss

13 thoughts on “I Love My Hearing Loss Friends

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      It was! Thanks for your comment.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      We are! Loved our time together! ❤️

  1. Hearing loss is a family trait, so I mostly share support with several cousins who also have severe hearing loss. I know only a few others who wear HA’s, and they are able to stay in the mild to moderate range.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thank you for sharing your story.

  2. You hit the nail on the bucket with your overview comment. Over 20 years attending the HLAA Conventions I have always felt at home and relaxed around our colleagues and peers. It is exciting attending a convention without worrying about communication needs. HLAAers can focus on the workshops, educational demos, exhibit hall, symposium, meeting new members, and rekindling friendships with familiar faces.
    At HLAA, we are family.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Well said! ❤️

  3. I loved the convention. The syposium was outstanding and Gael was amazing as she always is. My biggest joy in attending a convention is sitting in an audience of 500 people knowing they each have a hearing loss or know someone who does. But, we understand thanks so captions, loops, hearing aids…just delightful.

    I deeply enjoyed speaking with you and Gael and was sad I did not ask my grandson to take a picture. I’ve given your book to several people who have a hearing loss. It is the book I wish I had been able to read 60 years. ago.

    Thanks for all your many contributions.

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Thank you! It was great meeting you!

  4. Brad – Woburn, MA – I'm brought to you by the letter "B" Bionic Ears Books Buddhism Blues Bruins Beers
    Brad says:

    This was my first conference and it was such a profound relief! I get my hearing loss from my father, too. And we also did not talk about any strategies, or the hearing loss at all really.
    It was so good to be ok with not hearing well. And I got to use the T-coil setting on my hearing aids for the first time ever. I’m so glad I went!

    1. Shari Eberts – NYC – Shari Eberts is a passionate hearing health advocate and internationally recognized author and speaker on hearing loss issues. She is the founder of Living with Hearing Loss, a popular blog and online community for people with hearing loss, and an executive producer of "We Hear You," an award-winning documentary about the hearing loss experience. Her book, "Hear & Beyond: Live Skillfully with Hearing Loss," (co-authored with Gael Hannan) is the ultimate survival guide to living well with hearing loss. Shari has an adult-onset genetic hearing loss and hopes that by sharing her story, she will help others to live more peacefully with their own hearing issues.
      Shari Eberts says:

      Amazing! Welcome to the community!

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