Hearing Loss: When You Feel Like Your Senses Fail You

One of my favorite parts of the annual HLAA Convention is the inspiring speakers. This year was no exception. Rebecca Alexander, a psychotherapist and author, was the keynote. She has Usher syndrome, which means that she is progressively going deaf and blind. Her vision problems presented in childhood, but when she began having trouble hearing in college, she received her diagnosis. Both senses would be taken from her over time. This is a crushing blow, particularly at age 19. The way she has dealt with such a huge loss is inspiring.

It is impossible to imagine the terror of losing two senses simultaneously, but I felt myself in her shoes as she shared her journey of acceptance and empowerment. I could relate to the stories she told about her struggles and the silly and brave things she did along the way. One story particularly resonated with me — the moment she realized she could no longer trust her senses.

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Should You Include Family in Your Next Audiologist Visit?

My recent article for Hearing Tracker ponders whether you should bring your family to your next audiologist appointment. What do you think? 

The power of including your family in your hearing loss journey can’t be overstated. This was on clear display at a recent HLAA panel discussion on family relationships and hearing loss. The panelists included a married couple, a mother/daughter and two sisters. One person in each pair had hearing loss, while the other did not. The love and respect that they had for one another shone through. Not only were they great partners in life, but also in communication. Each acknowledged that it took a lot of work, but the payoff was significant for both sides.

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Don’t Take Your Hearing Loss Journey Alone

My latest post for FindHearing.com talks about the importance of finding hearing loss peers. Thank you to all my readers for making this site a vibrant source of support and learning for people with hearing loss. See an excerpt of the piece below.

The Importance of Hearing Loss Peers

Like most people, I started my hearing loss journey alone. My father had hearing loss, but he never discussed it, instead living his adult life suffering with denial and stigma. He eventually isolated himself from his family and friends, leading a lonely life. When I first noticed my hearing loss in graduate school, I was terrified, assuming I was doomed to a life of solitude as well.

For many years, I followed in my father’s footsteps, hiding my hearing loss from all but my closest friends, but once I had children, this all changed. Since my hearing loss is genetic, I worried that I may have passed it onto them. I didn’t want them to see me feeling embarrassed by my hearing loss or disrupting my life to hide it. I needed to set a better example of how to thrive despite hearing loss.

To educate myself, I began volunteering at a local hearing loss non-profit organization. This helped me to meet other people with hearing loss and discover they were leading vibrant and fulfilling lives. They engaged in meaningful work and had active social calendars. I began to feel less alone and less afraid.

How To Find A Hearing Loss Support Group

Many hearing loss support groups exist — both actual and virtual. Hearing Loss Association of America runs the largest group in the United States, operating more than 100 local chapters and holding an annual convention each year.

Click here to continue reading on FindHearing.com. 

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I Won’t Let My Hearing Loss Hold Me Back

Sometimes in life, you need to take a risk — go outside your normal day-to-day routine for a chance to enrich your life, learn something new, or push yourself to develop new skills. For me, that time is now. I am embarking on a 4-week yoga teacher training in Fiji. It is something I have always wanted to do and the timing is perfect with my children at summer camp. Maybe one day I will teach yoga classes for people with hearing loss.

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Finding Comfort with the Discomfort of Hearing Loss

One of the reasons hearing loss is so frustrating is because we cannot control it. When entering a new situation, we don’t know what listening challenges we will meet. We can’t figure out in advance if an important speaker will be a mumbler or worse yet a mumbler with a voice in your hardest to hear frequencies. We have little authority over our hearing loss, but what we can control is how we react to it and what steps we take to counteract it. We take back the power when we learn to find comfort with discomfort.

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